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My usual nightowlishness has been replaced by a desire to go to bed early. This would be fine except toddling off at 8PM means I am up again (wide awake) at mignight. So here I am, keeping myself up until 10.

Weird.

Feeling quite horrid.

Whatever it the mechanism is that sets of CFS, it appears to be doing its thing within me at the moment. It's not just that I've overdone something and need to recover, it's that the sense of overdoing things is hitting with no obvious provocation.

And symptoms are reconfiguring themselves.

This is where so much stuff written about managing CFS falls down. Even psych. literature (the Wessely School of thought) acknowledge the idea of needing to keep within limits, and work back slowly. What they fail to acknowledge is that something happens to set off the problem. We don't know what the something is, and we don't know what it's setting off.

So as a person living with the condition, I've had to learn to live with something I don't see acknowledged by the admittedly limited research - and that's the fact that sometimes, it gets worse. And you don't always know why.

I can look at the current situation and see reasons, but what about all the other times I have stressors and I *don't* fall in a big heap?

There is something going on here that is not identified.


~~~

And in other news: my sinuses want to live beside the seaside. Without the rest of me I think.

Comments

( 1 comment — Leave a comment )
pondhopper
May. 31st, 2013 01:07 pm (UTC)
I wish somebody would come up with an effective treatment for CFS.
I know you wish that more than anybody.
( 1 comment — Leave a comment )

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