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Medical update

Tired and frazzled and probably pre-menstrual (at least I hope so, because I'd like this to end soon please).

Really sick of dealing with the crap I have to keep dealing with. Medical, social and emotional.

Went and had my first methotrexate injection today. Learnt the procedure for self-administration, it's all quite simple.

I may feel queasy tomorrow.

Unfortunately, of late the very thought of giving myself an injection has been making me feel odd. I haven't done my B12 injections since before I went into hospital and even then they were starting to bug me a little.

Then there was hospital and 6 days of being a human pincushion. Didn't help.

According to the nurse who walked me through the process with the new drug today, this is not uncommon even among people who've been doing it for a while. She's had patients who have had no problem self-injecting for years, who can see and feel the drug doing them good, but who then find they just can't face the procedure anymore. Her advice is not to be brave about it, but to get someone else to do it. And if all else fails, I can go there once a week and she'll do it. She thinks this is more effective in the long run, she thinks toughing it out seems to lead to more serious needle phobia.

So in spite of having done it myself today, 10B might be doing it for me for a while...so long as he doesn't develop the same problem too. Apparently district nurses won't do it because of the drug being classified as cytotoxic, which means they need to have had special training which they have not usually had. (I may make further enquiries on this front, maybe there's someone who's done the training.)

I am to have blood tests every week for the next few weeks as well.


( 10 comments — Leave a comment )
May. 4th, 2009 08:33 am (UTC)
If only we could stick needles into the lurgy feelings, it'd be much easier. Somewhere between acupuncture and self-voodoo.

I do hope it helps!
(no subject) - shehasathree - May. 4th, 2009 08:54 am (UTC) - Expand
May. 4th, 2009 09:01 am (UTC)
The nurse sounds really good and spot on. But the whole thing in general sucks.

Really sick of dealing with the crap I have to keep dealing with.

Yup. :-(
May. 4th, 2009 09:02 am (UTC)
That's thoughtful advice by the nurse. I've been getting that way with needles ever since all those blood draws for the clinical trial. Never used to phase me a bit. It's nice to give yourself permission to have a break.
May. 4th, 2009 11:00 am (UTC)
I go through phases like that giving blood samples. I can imagine it happening like the nurse says self administering. I get the same swallowing tablets. It is very odd.
Can you get out to her to get it done? It might not be detached from you enough if 10b does it for it to get any easier.

One less thing to think about would be nice eh! x
May. 4th, 2009 04:39 pm (UTC)
I'm behind on posts but curious about the reason for the methotrexate. You're the second person in my friend's list that I read about using it today.

I know you said you're needing to catch up on posts too in a recent post...IRC, so if you're too down to reply, I'll understand, and work on catching up myself.
May. 5th, 2009 07:27 am (UTC)
Methotrexate is now used for Crohn's Disease, which I have, and which is not responding well to the stuff I've been on for years (which has nasty side effects anyway).

It was originally developed as an anti-cancer drug, then used in auto-immune disease starting with (I think) Rheumatoid Arthritis. In fact, Crohn's Disease drugs always seem to have come via Rheumatoid Arthritis.

May. 5th, 2009 01:22 am (UTC)

When I went on injected insulin, Mrs. Professor declared herself too squicked out to learn, and declined. When our cat became diabetic, she learned how to inject for the cat.

Tell 10B he's being a good husband!
May. 5th, 2009 07:28 am (UTC)

Well I'm sure it's because she *knew* you could manage...
May. 5th, 2009 09:00 am (UTC)
I can well imagine people just get to the point where anything is better than *more needles*. I also agree - from my own experience - that trying to be brave just makes the fear worser.

Good luck with methatrexate. I hope you're still well enough for a visit later this week.
( 10 comments — Leave a comment )


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