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A Good Link For understanding ME/CFS.

A brief but worthwhile article about cognitive dysfunction and how it effects people with ME/CFS.

Most useful for friends and relatives. If you have ME/CFS it's probably a bit too complicated and/or old news, so you're excused.

Includes a nice illustration of the type of strategies we end up employing to manage better with our particular version of cognitive dysfunction.

It's all in a nutshell and won't take long, so if you're interested in understanding ME/CFS, please have a read.

Thanks to rickybuchanan for digging it out for me.



( 8 comments — Leave a comment )
Jun. 16th, 2009 11:23 am (UTC)
Thank you for posting that link. The difficulties sound very similar to those faced by my autistic friend Wendy.
Jun. 16th, 2009 01:01 pm (UTC)
Thank you for that. It does help....a lot.
Jun. 16th, 2009 05:21 pm (UTC)
The tips in that article are good for anyone butting up against their physiological limits.

I had to use similar tactics when dealing with groceries while I had injuries - people were too much, unexpected movement near me was too much, I was in enough pain that simply switching my attention from one place to another could make me fall down (I get that with headaches, and with major pain), getting everything on the list was a horrible idea, etc.

Slow and smooth, one thing at a time, less chaos, time it, plan it, don't waste too much energy planning... That's how I did things, or tried to. I'm not very good at it. :)
Jun. 16th, 2009 09:29 pm (UTC)
That is very interesting and useful. It's true, it's not as long as a published research article, but I still have a hard time reading through stuff like that these days, gah.

I think it would be most useful in describing to others what the dysfunction is like. I've already figured out a lot of those strategies out of necessity, but it's nice to have someone Legitimate explain the whole thing and take it seriously.
Jun. 17th, 2009 12:46 am (UTC)
too groggy I think...
I can barely understand it myself. But left it open and I think my husband read it since it was scrolled to the bottom...should find out if it was helpful to him in understanding me.
Jun. 17th, 2009 12:28 pm (UTC)
Thanks for that. I skimmed over it and will read it in full when I have some spare headspace.
In related news, I have now put the exercise article into my handbag for next time I see 10B. Sorry for forgetting it last night - holiday brain.
Jun. 18th, 2009 01:37 am (UTC)
Great article, thank you! This explains me, and I don't even have CFS - although I do have impaired working memory and I know from experience my multi-tasking is broke.

How do I find the car? I take a photo of it, and the street name if necessary, with my iPhone. This is a great help because I don't have to worry about how I will find the car - or indeed what it looks like if its not my car.

I agree about paradigm shift. a successful shopping trip is one in which I don't leave the grocery store dazed, confused and ill with nothing in my basket. That's my new paradigm. Or if I do, it's because I realise it was a mistake to come in the first place, and since that's EXCELLENT MINDFULNESS & SELF CARE it counts as a win :0)
Jun. 25th, 2009 12:13 am (UTC)
I just kinda glanced at this article... it looks like the technical for "spoon theory".
( 8 comments — Leave a comment )


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