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Today's goal: do not fall asleep before 10PM.

I could do with a bit of sunlight. The cloud cover has been so thick this week that you can't tell what time of day it is.

PS:most likely, if I don't fall asleep by sundown, I'll be capable of staying awake all night if I so choose. Life is strange.


( 6 comments — Leave a comment )
Sep. 21st, 2010 06:42 am (UTC)
I've been reading stuff lately about endocrine systems and sunlight/light therapy... have you done any research (anecdotal or otherwise) into that. I'd be interested in your opinion.

(When I comment about this kind of thing it's not in a "I think you should try this treatment" kind of way. It's "I'm thinking out loud" kind of way.)
Sep. 24th, 2010 03:15 am (UTC)
Understood. :) I did a fair bit of work trying to sort out sleep issues a few years ago, but other issues have taken over.

Indpendently CFS, I have Obstructive Sleep Apnoea and a tendency to Restless Legs Syndrome, although this seems to be linked to low iron levels caused by Crohn's Disease.

My sleep problems that are a part of the Chronic Fatigue Syndrome are: difficulty initiating and maintaining sleep, and Delayed Sleep Phase Syndrome. Also unrefreshing sleep. When it first developed I also had hypersomnia for a few months. Insomnia is also common!

There has been research into sleep and CFS, but while sleep disturbances of various kinds are part of the syndrome, I think the general consensus now is that they're a symptom, not a cause. So working towards good sleep is a good idea and will make life a lot easier, but it won't be a cure.


For Delayed Sleep Phase Syndrome I tried taking melatonin, and found out the hard way that it's contraindicated for people with auto-immune disease (eg - Rheumatoid Arthritis and Crohn's Disease). Which given it's rise in popularity (and the fact it's not a prescription medicine) is something that *should* be trumpeted loudly. Bought on quite a Crohn's flare.

Melatonin increase immune system activity which is bad if you have auto-immune disease - you manage auto-immune disease by suppressing it.

Having said that, it did do ...interesting...things to my sleep and anecdotally, I think there are a few people round with CFS who've used it to good effect. But not as many as you would think.

My sleep doctor thinks there may be melatonin analogues available soonish and would like me to try them if/when they become available.

I haven't tried light therapy basically because adjusting my sleep cycles has lower priority for me at the moment, but other people with CFS use it to try and keep their sleep hours within conventional limits. Again, not as many as you would think although of course, light therapy is more complicated. And doing it behaviourally (ie - forcing yourself out of bed) just doesn't work. If it's too hard, your body crashes and you're sicker than ever.

It seems to me that the delayed sleep is more a symptom than a cause, which is why I'm willing to accord it lower priority in management.
Sep. 28th, 2010 05:10 am (UTC)
Wow, that's all very interesting. I hadn't known auto-immune disease + melatonin = bad.

Totally agree you've got bigger fish to fry than sleep cycles! And also understand that, like you say; the sleep is the symptom, not the cause.
Sep. 21st, 2010 08:08 am (UTC)
Sun? what sun?
Sep. 21st, 2010 09:27 am (UTC)
I have sun to give away...now to find a way to bottle it up and send it. You can have some of the heat also.
Sep. 21st, 2010 09:56 am (UTC)
wake up!!!!! wake up!!!!!
( 6 comments — Leave a comment )


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