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This afternoon I am determined to stay awake in order to sleep better tonight and get back my better sleep routine. 10B has been at home today hammering away at paperwork and a few desperate domestic tasks which was great except for the fact that such days invariably include him having a nap about nowish. The nap works well for him and I entirely understand the appeal...

and he'll wake up feeling refreshed and okay...

but it does not work so well for me. I will wake up feeling groggy and blah and then be awake until 3AM and find it just as hard to stay awake again tomorrow...

must resist...!

The sleepiness is probably being compounded by the fact that I used my CPAP machine for the first time in ages last night. This often brings on short term increased sleepiness because your body, suddenly noticing the absence of apnoeas and feelign the capacity for proper sleep, decides that now is a good time to call in payment of your massive sleep debt. So this means as well as repaying hospital-imposed sleep deprivation, Crohn's Disease imposed sleep deprivation and cortisone derived sleep deprivation, the apnoea lads are around too, cracking their knuckles and pointedly not making threats about 'ow hunfortunate it would be if I were to slip on that deceptively flat bit o'flooring near the back door.

But it can wait until tonight for the next installment. With the CPAP machine in attendance to ensure no mishaps.


Yesterday I ate half a small canteloupe. I feel surprisingly sanguine about the prospect of eating fruit and vegetables.


I am in no pain. Prior to going into hospital I was getting so much of the random ache and pain thing...I didn't realise until yesterday how much was probably the arthralgia of Crohn's Disease. I have one spot in my torso that tweaks - an obvious intestinal weak point, but I haven't even had a proper headache yet(headahces can also be a neurological manifestation of Crohn's).

Most interesting.

I guess that means the IV cortisone worked. Unfortunately it is buggering up my eyes again though (this is one of the many reasons I'm looking for an alternative to cortisone/prednisolone even to the point now of considering what is effectively amputation), and I could eat a horse and probably will if one happens along although living where we do I may have to make do with random humans, but it certainly hit the spot.

The cat's snoring.


( 6 comments — Leave a comment )
Dec. 15th, 2010 04:29 am (UTC)
I'm very pleased to read that you're in no pain. I've been there with my UC, and know how splendid it can be, to have it eased.
Dec. 15th, 2010 11:45 am (UTC)
I just got back form England and am catching up with your posts. Cortisone induced or not, no pain is wonderful and I'm glad you have some relief for a while. Surgery is indeed a personal decision but I do know people who have benefited so I don't know...it's a hard decision to make.
But indeed...yay for pain free!
Dec. 15th, 2010 10:43 pm (UTC)
I bet it's a handy and welcome perspective to have no pain. I hope it's lasting. Those are some tough decisions to think about.

Yeah, it's frightening to think of all the payback our body wants when we are finally able to give it what it needs. Mmm blessed sleep!
Dec. 16th, 2010 03:01 pm (UTC)
Why resist? Forget what the clock says. You have a massive sleep debt.
Go, sleep. And sleep.
And then, when you feel you can't sleep anymore but are still tired, do my trick of taking some sleeping pills, and sleep some more.

A few days later (I, at least) emerge out of the sleep debt, sore from bed, but feeling a lot better.

Done it this week. Awake now (2am) because of it. But don't feel too bad - just not sleepy. Went to sleep on Tuesday. Medicated sleep today because I wasn't yet ready for the world again.

Of course, this may totally not work for you. It helps if you have nothing on your schedule.

Um, amputation of *what*? intestine?
Dec. 19th, 2010 01:53 am (UTC)
Large intestine. I'd have a stoma at least temporarily, possbily for good. Seeing my regular old gastro on Tuesday for second opinion and referral options.

Feeling pretty good now - it's Sunday. Went out yesterday and not gettin g much CFS payback at all.

But...stomach is going downhill again. So the Crohn's is settling back in.
Dec. 19th, 2010 03:06 am (UTC)
Crap. (bad pun).

What's a stoma?

I'm going well today too - after visitor yesterday (Nick) and out shopping on Friday. Working on Sal's embroidery.

Check out http://elmsleyrose.blogspot.com/ (just the last photo will do - shows the finished piece) for the embroidered piece I've done for Donna- friend I'm going to on Christmas Day.

I wrote the below to you this morning, but Yahoo thinks my account is being used for spam, so it won't let the occasional mail through, so I'll copy it here :

"Toadstool Beanies

http://www.etsy.com/shop/dadaya?ref=seller_info/ -

Pretty cool!

I hope you feel less discombobulated soon. :-)"
( 6 comments — Leave a comment )


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