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To-Do Lists.

What would I like to do for the next little while?

Unfortunately, more of the same.

Only not quite. And it's not necessarily about what I'd like to do, but a combination of that and what's within my means.

On the plus side, I am actually feeling enthused for the doing-of-things. I was losing interest for a while there, depression was looming, but I think that's easing.

So: keep up with the daily small amount of reading, best done in the morning when I need the distraction because that's also when I'm most likely to fall into negative thinking patterns and messing myself up. Keep obsessing about knitting, keep pecking away at getting more organised and getting rid of superfluous stuff, keep telling myself I'll call that art teacher again sometime soon maybe. Consider venturing out past the front gate more often. Try to socialise just a little bit more... keep getting the laundry done and keep paying bills on time.

It might be a rather dull life, but at least it's mine.


I am a little more optimistic about the consequences of things I have little control over: thus far the clinical trial has not worked out for me, but soon I'll be able to knock my symptoms down with the regular meds (ie-prednisolone). Prednisolone sucks and is the entire reason I'm looking for new options, but in the short term it's very effective. Then I'll be eating and sleeping better, and not nervous about going out on account of the Crohn's Disease. I'll be able to reinstate my CPAP machine and get better sleep.

I'll also be able to do a few things I'm not actually forward to, but which need to be done, like tackling the cholesterol problem. I'll get peace of mind from that.

And soon I'll be on the open-label trial anyway, and I can find out at last whether it works or not and have a better idea of what my future holds.


And - my dental guy, (now known as The Remarkable Professor), has finally got his new splint for Obstructive Sleep Apnoea happening. This is a splint for people who could manage their OSA effectively with a splint, if only they didn't also have Temporomandibular Disorder (ie - a dicky jaw joint. It makes regular sleep apnoea splints impossible to use). There are lots of people with both problems, who subsequently have to go through all the fuss and bother of using a CPAP machine, who might now be able to use a splint instead.

I hope so anyway. I'm certainly willing to give it a try.


Finally, I think messing about with the heart rate monitor may prove fruitful. So far, I've managed to establish that I have _no idea_ what my heart rate is at any given moment just based on my subjective sense of how I feel. I do have to check the monitor whenever I want to know.


( 3 comments — Leave a comment )
Mar. 19th, 2011 10:26 am (UTC)
I really hope the open label trial works better for you...an you take the prednisolone while you're doing that?
Mar. 19th, 2011 02:41 pm (UTC)
I'm not actually sure. I'm currently on 20mgs/day, which is as much as I can be on while on *this* trial. I think there might be more flexibility in the next one. The main thing is that although I'm going back for regular tests for several more weeks for this trial (regardless of when the other one gets started), it's okay for my pred.dose to go up as of next Wednesday. It might need to be back at 20mgs and stable for the next trial, but that should be okay.
Mar. 19th, 2011 08:06 pm (UTC)
Keep on paddlin', sweetheart.
( 3 comments — Leave a comment )


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